Genetic information is more valuable when shared.

Genes contain important information about your health and disease.

Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer.

Mutations should not be ‘trade secrets’ - join us and Free the Data!

 

Free My Data

Your mutation and health information are important in the search for better health. Share your information safely and securely.


Join the Movement

Your story, photos, and/or videos are important for others to experience. You can help encourage more people to participate in Free The Data!

Learn More

Learn why sharing your mutation is important and how the privacy and sharing system works.



Free the Data Hall of Fame

Free the Data doesn’t stop here! Some genetic testing labs are already sharing genetic information. We’d like to acknowledge the following labs, who currently contribute data about the BRCA1 and 2 genes to the open access resource ClinVar.

Ambry Genetics Aliso Viejo, CA
Counsyl South San Francisco, CA
GeneDX Gaithersburg, MD
Invitae San Francisco, CA
[Coming Soon] Michigan Medical Genetics Lab Ann Arbor, MI
[Coming Soon] Pathway Genomics San Diego, CA
University of Chicago, Genetic Services Laboratory Chicago, IL

Want to help grow this list? Sign our letter to genetic testing labs! Ask them to share their data with ClinVar, and work with all of us towards a better future in medicine.

“As patients we have the power to change the way our information is shared. I pledge to share my information to help improve patient care and advance the treatment of these diseases that have affected my family for generations.”
- Joanna Rudnick, patient advocate & Emmy-nominated filmmaker of the documentary In the Family.
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