We're thrilled to announce that US Representative Debbie Wasserman Schultz is joining the movement to Free the Data! On October 8, the Congresswoman was named honorary chair of the Free the Data coalition.
Read the press release here, and be sure watch our interview with the Congresswoman to find out why it's so important to have access to our genetic information.
Genetic information is more valuable when shared.
Genes contain important information about your health and disease.
Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer.
Mutations should not be ‘trade secrets’ - join us and Free the Data!
Free My Data
Your mutation and health information are important in the search for better health. Share your information safely and securely.
Join the Movement
Your story, photos, and/or videos are important for others to experience. You can help encourage more people to participate in Free The Data!
Learn why sharing your mutation is important and how the privacy and sharing system works.
Free the Data Hall of Fame
Free the Data doesn’t stop here! Some genetic testing labs are already sharing genetic information. We’d like to acknowledge the following labs, who currently contribute data about the BRCA1 and 2 genes to the open access resource ClinVar.
Aliso Viejo, CA
South San Francisco, CA
Emory Genetics Laboratory (Emory data shared through EmVClass)
San Francisco, CA
[Coming Soon] Michigan Medical Genetics Lab
Ann Arbor, MI
San Diego, CA
University of Chicago, Genetic Services Laboratory
“As patients we have the power to change the way our information is shared. I pledge to share my information to help improve patient care and advance the treatment of these diseases that have affected my family for generations.”
- Joanna Rudnick, patient advocate & Emmy-nominated filmmaker of the documentary In the Family.