Genes contain important information about your health and disease.
Changes, called mutations, in BRCA1 and BRCA2 greatly increase the risk of hereditary breast and ovarian cancer. Sharing these mutations helps clinicians improve patient care and helps researchers advance our understanding of hereditary breast and ovarian cancer.
Mutations should not be ‘trade secrets’ - join us and Free the Data!
Free My Data
Your mutation and health information are important in the search for better health. Share your information safely and securely.
Join the Movement
Your story, photos, and/or videos are important for others to experience. You can help encourage more people to participate in Free The Data!
Learn why sharing your mutation is important and how the privacy and sharing system works.
Free the Data Hall of Fame
Free the Data doesn't stop here! You can share your data and labs can share their data, too. Some BRCA testing labs share mutation data already! Check out our list of labs who currently have BRCA1 and 2 data available in the open access resource ClinVar:
South San Francisco, CA
San Francisco, CA
[Coming Soon] Ambry Genetics
Aliso Viejo, CA
[Coming Soon] Michigan Medical Genetics Lab
Ann Arbor, MI
[Coming Soon] Pathway Genomics
San Diego, CA
But that doesn't look like very many labs! That's because it's not. Out of 78 labs that offered BRCA 1 and 2 testing worldwide, only 6 have BRCA 1 and 2 data available in ClinVar.
“As patients we have the power to change the way our information is shared. I pledge to share my information to help improve patient care and advance the treatment of these diseases that have affected my family for generations.”
- Joanna Rudnick, patient advocate & Emmy-nominated filmmaker of the documentary In the Family.